NARRATIVES AND ILLNESS:  A SELECT BIBLIOGRAPHY

This bibliography is being developed: new items and ideas for it will be gratefully received. This version is updated for June 2013

 

 

See Barbara Hepworth: The Hospital Drawings

 

Contents
1. Narratives and illness
2. Samples of illness stories
3. Examples: Transplants
4. Other:AIDS/HIV
5. Methods
6. Arts – film and photo
7. Selective Medical Sociology
8. A few websites

Appendices

 

 

1. NARRATIVES AND ILLNESS

Foundational Discussions of Narratives and Illness

Arthur Kleinmann.                             The Illness Narratives: Suffering, Healing And the Human Condition ((1988) Basic Books  – the front runner book. Deeply influential.
Howard S.Brody                                 Stories of Sickness. Oxford University Press (2003, 2nd edition).
G.Thomas Couser                               Recovering Bodies: Illness, Disability and Life writing (1997) University of Wisconsin Press.
Rita Charon.                                            Narrative Medicine: Honoring the stories of illness (2006) Oxford
Arthur W.Frank                                   The Wounded Storyteller: Body, Illness, and Ethics. (1995) Chicago: University of Chicago Press.
Anne Hunsaker Hawkins              Reconstructing Illness 2nd ed 1998
Brian Hurwitz, Trishha Greenhalgh & Vieda Skultans Narrative Research in Health and Illness  2004 Wiley (and on line in library?)

The work of Arthur W. Frank

Arthur W. Frank                                  At the Will of the Body: Reflections on Illness. Boston: Houghton Mifflin, 1991.
_____. 1995.                                               The Wounded Storyteller: Body, Illness, and Ethics. Chicago: University of Chicago Press.
————                                                The Renewal of Generosity: Illness, Medicine and How to Live (2004) Chicago
———-                                                    Letting Stories Breathe  (2010) ChicagoSee also: http://www.arthurwfrank.com/publications

Samples of Journal Articles on the Sociology of Narrative and Health

Atkinson, Paul                        “Illness Narratives Revisted:The Failure of Narrative Reductionism” Sociological Research On Line 14 (5) 16:  (2009) see<http://www.socresonline.org.uk/14/5/16.html>  doi:10.5153/sro.2030
M Kelly and H. Dickinson     “The narrative self in autobiographical accounts of illness’ The Sociological Review 45 (2): p254-78
Lars-Christer Hyden               “Illness and Narrative” Sociology of Health and Illness Vol 19, p48-69 (1997)
Christine Stephens                  “Narrative analysis in health psychology research: personal, dialogical and social stories of healthHealth Psychology Review, Mar 01, 2011; Vol. 5, No. 1, p. 62-78
Joanne Reeve, Mari Lloyd-Williams et al ‘Revisiting Biographical Disruption: Exploring people with terminal cancer’ Health 14: 1 2010 p 178-95
Chris Sinding & Jennifer Wiernikowski ‘Disruption foreclosed: older women’s cancer narratives’ Health: July 2008 Vol 12: 3 p389-411
Paul E Mazmanian                  “ Book Review: Narrative Research in Health and Illness Qualitative Health Research, Dec 01, 2005; Vol. 15, No. 10, p. 1411-1412
Christopher F.C Jordens        “ Narrative Research in Health and IllnessBMJ (British Medical Journal), Jun 04, 2005; Vol. 330, No. 7503, p. 1336-1336
Michael Bury                          ‘Chronic illness as biographical disruption”   Sociology of Health and Illness (1982) 4:2 p167-82
———-                                   ‘Illness narratives, fact or fiction’, Sociology of Health and Illness, 23 (1):p263-85

Autobiographies of Illness: a selection

Sayanti DasGupta & Marsha Hurst eds  Stories of Illness and Healing : Women write their bodies. Kent State University Press. 2007
Barbara  Peabody                               The Screaming Room: A Mother’s Journal of her son’s struggle with AIDS. NY. Avon (1987)
Paul Monette                                          Borrowed Times: An AIDS memoir  (1988) NY: Harcourt
Jean-Dominique Bauby                   The Diving-Bell and the Butterfly. (2002/2008) London: Harper
Ruth Picardies (1998)                     Before I say Goodbye  (1998).Middlesex: Penguin (story of a breast cancer in diary form and originally published in the Guardian)
Gillian Rose                                             Love’s Work Vintage (1997)
Robert Murphy                                    The Body Silent: The Different World of the Disabled. 1990.
Siri Hustvedt                                         The Shaking Woman: or A history of My Nerves  (2010) Sceptre
Ann Oakley                                              Fracture: Adventures of a Broken Body  Polity (2007)
Havi Carel                                                Illness  Acumen Press (2008)
Ulla-Carin Lindquist                         Rowing without oars  (2005) Hodder. The last year of a dying woman.
Federica Caraccioli                            Alzheimer: A Journey Together (2006) London: Jessica Kingsley.  A carer tells her story of looking after a husband with Alzheimer’s.
Tim Parks                                                Teaching us to sit still
Tony Judt                                                 The Memory Chalet
Reynolds Price                                     A Whole New Life: An Illness and a Healing 2003 Scribner
Siddharta Mukherjee                        The Emperor of All Maladies  [2011] Fourth Estate
Randy Pausch                                        The Last Lecture (2008). Hyperion. Best seller of the meaning of life from a man with terminal cancer
Eve Ensler                                                In the Body of the World (2013) Metropolitan. Just published, from the author of The Vagina Monologues.
Julian Barnes                                          Levels of Life  (2013) Cape.  The latest of many moving accounts of bereavement.
Philip Gould                                            When I Die (2012/13) Abacus. A recent cancer death.
See also: the Radclife Publishing series on Patient Narratives, including: Clark, Rachel. A Long Walk Home. 2002; Hanzak, Elaine. Eyes without Sparkle: A Journey through Postnatal Illness. 2005; Hayward, Kate. From Oncology Nursing to Cancer Patient: My Journey There and Back. 2008; Wield, Cathy. Life after Darkness: A Doctor’s Journey through Severe Depression. 2006; Cromarty, Margaret. Stroke–It Couldn’t Happen to Me. 2008.
Norton Lance Armstrong It’s not about the bike: My journey back to life (2001) London: Yellow Jersey Press. (A sporting legend is diagnosed with testicular cancer  and gives ‘ an inspirational story of one man’s battle against the odds’: await a new ‘story’? )

 

Some  ‘ Classics of Narrative Medicine’

By social scientists

Julius Roth                                               Timetables: Structuring the passage of time in hospital treatments and other careers Bobbs Merrill (1963)
Irving Zola                                               Missing Pieces Temple University Press (1982)
Arthur W.Frank                                   At the will of the body: Reflections on illness Houghton Mifflin 2002

Literary Classics

Leo Tolstoy                                            The Death Of Ivan Ilyich
William Styron                                      Darkness Visible
Sylvia Plath                                             The Bell Jar
Virginia Woolf                                       On Being Ill (1930)  Masschusetts. Paris Press 2002.
Anatole Broyard                                 Intoxicated by my illness (1992). New York: Clarkson Potter
Susan Sontag                                          Illness as Metaphor (1983)  / AIDS as Metaphor (published together in 2009): see also Regarding the Pain of Others (2004)
Audre Lorde                                           The Cancer Journals (1980) San Francisco: Aunt Lute Books
C.S.Lewis                                                   A Grief Observed
Elie Weisel                                               Night 
 
Thomas Mann                                       The Magic Mountain (1924)
Aleksandr Solzhenitsyn                 Cancer Ward (1967)

See also: Robert Louis Stevenson, Dr. Jekyll and Mr. Hyde (Bantam) 

Sawako Ariyoshi, The Doctor’s Wife (Kodansha) 
William Carlos Williams, The Doctor Stories (New Directions) 
Tillie Olsen, Tell Me A Riddle (Rutgers) 
Albert Camus. The Plague (Vintage) Franz Kafka, Metamorphosis

As well as: Brody above Stories of Sickness 2nd ed 2003;  Salinsky, John. Medicine and Literature: The Doctor’s Companion to the Classics. Radcliffe Publishing: 2004.m

Some surgeon narratives
Atul Gawande                      Better: A Surgeon’s  Notes on Performance (2008) Profile Books
—————-                      Complications: A Surgeon’s Notes on an Imperfect Science (2008)Profile Books
————–                          The Check List Manifesto: How to get things rights (2011)Profile Books
Pauline W Chen                   Final Exam: A Surgeon’s Reflections on Mortality  Random House, 2007
Thomas E Starzl                 The Puzzle People: Memoirs of a Transplant Surgeon Pittsburg 1992
Roy Calne                               The Ultimate Gift   Headline Publishing 1988
Christian Barnard            One Life MacMillan (1970)

2. NARRATIVES AT WORK

Ken Plummer                                         “A Manifesto for Social Stories” in Liz Stanley ed Documents of Life Revisited: Narrative and Biographical Methodology for a 21s Century Critical Humanism  (2003) Ashgate               (also on line at web site: https://kenplummer.wordpress.com/manifestos/a-manifesto-for-stories/)

Narratives and Stories as therapy

Arthur Frank                                         The Wounded Story Teller  (1997) Chicago
Arthur Kleinman                                 The Illness Narratives (1989) Basic
Hilde Lindemann Nelson                Damaged identities: Narrative repair (2001) Cornell
John McLeod (1997)                        Narrative and Psychotherapy Sage
Faye Ginsburg                                                         Disrupted Lives: how people create meaning out of chaotic lives (1999) California
D. Spence                                                   Narrative truth and historical truth: meaning and interpretation in psychoanalysis (1982) Norton
Oliver Sachs                                            The man who mistook his wife for a hat ((1985) Duckworth
Michael White                                       Maps of Narrative Practice (2007) Norton

Narratives and Stories as Moral Imagination: Narrative Ethics and Grounded Moralities

Coles, Robert (1989)                        The Call of Stories : Teaching and the Moral Imagination. Boston: Houghton Mifflin
———– (2010)                                 Handing One Another Along: Literature and Social Reflection. NY: Random House
Eakin, Paul John ed (2004)            The Ethics of Life Writing  Cornell University Press
Frank, Arthur W. (2004)                The Renewal of Generosity: Illness, Medicine and How to Live. Chicago
———– (2010)                                 Letting Stories Breathe. Chicago
Himmelfarb, Gertrude (2006)    The Moral Imagination: From Burke to Trilling. London:Souvenir
Lara, Maria P (1998)                         Moral Textures: Feminist Narratives in the Public Sphere. Cambridge: Polity
MacIntyre, Alastair (1984)          After Virtue: A Study in Moral Reasoning. Oxford
Noblit, George W. & Van O Dempsey The social construction of virtue: the moral life of schools (1996) SUNY.
Nelson, Hilde Lindemann ed (1997) Stories and their limits: Narrative approaches to bioethics. Routledge
————-(2001)                              Damaged Identities , Narrative Repair. Cornell UP.
Nussbaum, Martha  (1997)           Cultivating Humanity.  (1997) Harvard

Plummer, Ken (2003)                       Intimate Citizenship (2003) Ch 7: “Stories and the Grounded Moralities of Everyday Life”.
Plummer, Ken (1999)                       ‘The ‘ethnographic society’ at century’s end: clarifying the role of public ethnography’, Journal of Contemporary Ethnography, 28 (6).
Rorty, Richard (1989)                     Contingency, Irony, Solidarity. Cambridge
Witherell, C. & N.Noddings eds. (1991) Stories Lives Tell: Narrative and Dialogue in Education. New York: Teacher’s College, Columbia University.

3. AN EXAMPLE- TRANSPLANTS AND TRANSPLANT NARRATIVES

A Sociology of Transplant Donor World: A Select Bibliography

Studies of  Donor- Transplant

Renée C Fox & Judith P.Swazey. The Courage to Fail: A Social View of Organ Transplants and Dialysis  2nd ed  1978  – the classic story

Lesley Sharp . Strange Harvest: Organ Transplants, Denatured Bodies and the Transformed Self (2006) University of California Press  – excellent major new study with focus on donors

Kieran Healy. Last Best Gifts: Altruism and the Market for Human Blood and Organs (2006) Chicago – main focus on the issue of altruism and the market

Margaret Lock Twice Dead: Organ Transplants and the reinvention of Death California 2002
Akishan Sanal  New Organs Within Us: Transplant and the Moral Economy Duke ( 2011)

Keith Wailoo et al A Death Retold: Jessica Santillan eds , The Bungled Transplant and Paradoxes of Medical Citizenship  Chapel Hill: University of North Carolina (2006)

The Handbook

Dianne LaPointe Rudow, Linda Ohler & Tersa Shafer A Clinician’s guide to Donation and Transplantation  NACTO, The Organization for Transplant Professionals. Lenexa, KS.(2006)

Some key liver transplant narratives

Paul Robinson                     ‘My afterlife’ in his Opera, Sex and Other Vital Matters Chicago (2002)
a short article by a prominent academic detailing his liver story in the 1980’s.
Gregory Haines                  Greg: A liver transplant recipient  (2007) Milton Keynes: AuthorHouse
a very short and recent book (36 pages) which tells a clear, heart warming story of a triple liver transplant  of a young US man
Reg Green                               The Gift that heals: Stories of hope, renewal and transformation through organ and tissue donation (2007) United Network for Organ Sharing. Bloomington, Author House
A compendium of very short stories by all kinds of transplant patients. All are US based.
Elizabeth Parr                     I’m Glad You’re not Dead: A liver transplant story. (1996) Journey Publishers.  Out of print and I have not yet been able to read this.

Sample of other transplant narratives

Chris Klug                              To the edge and back: my story from transplant survivor to Olympic snowboarder (2004) Avalon  A classic story of ‘rising from the grave’.
Claire Sylvia                          A Change of heart: the extraordinary story of a man’s heart in a woman’s body.. ((1997) Little Brown. And it is extraordinary – the basis of much controversy.
Janet Hermans                    Perfect Match   USA. Xulon Press. (2006) Gives a strongly religjous interpretation to kidney transplantation
Gaea Shaw                              Dying to Live (2005)Pilgrims. Heart transplant
Charles Tolchin                                    Blow the House Down (2000) iuniverse.com  Lung transplant

 

Studies of  Donor- Transplant

Renée C Fox & Judith P.Swazey. The Courage to Fail: A Social View of Organ Transplants and Dialysis  2nd ed  1978  – the classic story
Lesley Sharp . Strange Harvest: Organ Transplants, Denatured Bodies and the Transformed Self (2006) University of California Press  – excellent major new study with focus on donors
Kieran Healy. Last Best Gifts: Altruism and the Market for Human Blood and Organs (2006) Chicago – main focus on the issue of altruism and the market

 

Ethics of Transplants

Veatch, Robert Transplantation Ethics
Ronald Munson Raising the Dead: Organ Transplants, ethics and society Oxford 2002
Petryna, Adriana  Life exposed: Biological citizen after Chernobyl
Hughes, Nancy Scheper   The Ends of the Body: The Global Traffic in Human Organs
David Benetar ed 2006 Cutting to the Core… contains:
M Smith The Prosthetic Impulse

Directions for a sociology of donor-transplant

Richard Titmuss. The Gift Relationship(1971) Allen-Lane. The truly classic and influential text.
Nikolas Rose      The Politics of Life Itself: biomedicine, power and subjectivity in the twenty first century (2007) Princeton Latest account but does not look at transplants
Nancy Scheper-Hughes with Loic Waquant eds. Commodifying Bodies (2002) Sage Crucial for the wider exploitative context
Ken Plummer. Intimate Citizenship (2003) Seattle: University of Washington Press My own account written before I was diagnosed and which only lightly touches on it.

Key journals

Transplantation: The Official Journal of the Transplantation Society
Transplant International (the European Society for Organ Transplantation)
American Journal of Transplantation
The Lancet
New England Journal of Medicine

4.OTHER EXAMPLES

AIDS /HIV

Stephen Mayes & Lynndall Stein                 Positive Lives: Responses to HIV – a documentary  1993 Cassell
Carol Squiers                                                           The Body at Rick: Photography of Disorder, Illness and Healing 2005 California: Berkeley
Stephanie Nolen                                                     28 Narratives of AIDS in Africa  (2012) Candlewick
Corrine Squire                                                        HIV in South Africa: Living with the big thing (2007) Routledge
Brid Cullen                                                                Colours of Hope and Promise : Personal Stories of HIV and AIDS  (1999) Wild Goose

5. NARATIVE METHODS

On Narrative

Jaber Gubrium & James Holstein                Analyzing narrative reality (2008) Oxford.
———————-                                              The Self we live by  (2000)  Oxford
Ken Plummer                                                           Documents of Life -2: an invitation to a critical humanism (2001) Sage
Howard S Becker                                                  Telling about Society (2007) Chicago
dix (1962) Oxford
Les Back                                                                      The Art of Listening (2007) Berg
Jane Elliott                                                                 Using  Narrative in Social Research (2005) Sage
Catherine Kohler Reisman            Narrative Methods for the Human Sciences (2007) Sage
McAdams, D. (1993)                         The Stories We Live By  (1993). New York: Guildford Press
Sidonie Smith & Julia Watson      Reading Autobiography: A Guide for Interpreting Life Narratives 2001 Minnesota
Molly Andrews and Corrine Squires       Doing narrative Research (2008) Sage
Molly Andrews                                    Shaping History: Narratives of Political Change (2007) Cambridge
Ken Plummer                                                           Telling sexual stories: Power, change and social worlds (1995) Routledge
Dan P.McAdams                                                     The stories we live by: Personal myths and the making of the self  (1993) Guildford
Charles Tilly                                                             Stories, Identities and political Change (2002) Rowman and Littlefield
Kay Schaffer & Sidonie Smith                        Human Rights and Narrated Lives: The ethics of recognition (2004) Palgrave
Rita Charon                                                               Narrative Medicine : Honoring the Stories of Illness (2006) Oxford
Arthur Frank                                                           Letting Stories Breathe (2010) Chicago
Christopher Booker                                           The Seven Basic Plots (2005) Bloomsbury

Auto/ethnography

Carolyn Ellis Final Negotations: A story of love, loss and chronic illness  Philadelphia: Temple University Press (1995) – classic early account and she is a leader in this field
Carolyn Ellis & Art Bochner Composing ethnography 1996 – series of essays ‘doing it’
Special issue: Journal of Contemporary Ethnography (Vol 35 No 4, August 2006)

Richardson, L. 1990: Writing Strategies. London: Sage.

6.  CULTURE, ART AND ILLNESS

Girogio Bordin & Laura
Polo D’Ambrosio                                 Medicine in Art  (2010) J.Paul Ghetty Museum
Philip Sandblom                                   Creativity and Disease  (1992) Marion Boyars
Alan Radley & Susan Bell               ‘Another way of knowing: Art, disease and illness’ Health May 2011  15.3 Special issue.
James Borton                                         The Art of Medicine in Metaphors  (2013) Ingram Books

Art

Barbara Hepworth                            The Hospital Drawings  (2012) Tate Publishing

Media

Clive Seale                                                Media and Health 2003 Sage
————                                                Health and Media Sociology of Health and Illness Vol 25 Issue 6  September 2003
Martin King & Katherine Watson Representing Health. 2004 Palgrave
Barron Lerner                                      When Illness goes public: Celebrity patients and how we look medicine  2006 John Hopkins

Photography

Cathy Greenblatt                                 Love, Loss and Laughter: Seeing Alzheimer’s Differently (2012) ADI /Lyons Press
See also : Cathy Greenblat             Alive with Alzheimer’s (2000) ( a book which you can also find sample from at http://www.cathygreenblat.com/category.cfm?nL=0&nS=9;
Jo Spence                                                   Putting myself in the picture. 1986. Camden
Terry Denett                                          ‘Jo Spence’s auto-therapeutic survival stratgeies” Health 15. 3. 2011
Stephen Mayes & Lynndall Stein                 Positive Lives: Responses to HIV – a documentary  1993 Cassell
Carol Squiers                                                           The Body at Rick: Photography of Disorder, Illness and Healing 2005 California: Berkeley

Poetics
Lavina Greenlaw ed                           Signs and Humours: The Poetry of Medicine  2007 Gulbenkian
Gwyneth Lewis                                    A Hospital Odyssey 2010 Bloodaxe books

A small sample of illness films

Amour (2012) dir: Michael Haneke
The Oscar winning French language film about love, ding and bereavement became an instant classic. 

My Life Without Me ( 2003) dir: Isobel  Coixet
Diagnosed with uterine cancer and two months to live, a 23 year old mother makes a plan for how to live the rest of her life. Sad, moving and deeply human.

The Savages (2007) dir and writer: Tamara Jenkins
An abused daughter and son confront the terminal stages of their abusive father

The Doctor (1991) dir: Randa Haines with William Hurt
A doctor needs major surgery and starts to see his own work and life in a different light

Lorenzo’s Oil (1992) Dir: George Misher
Parent’s struggle wit very ill child (who has AALD – adreno leuko dystrophy). Child lived till 30. A much discussed ‘case’.

Away from Her (2007), features Julie Christie. One of a number of interesting films on Alzheimer’s which also include: Iris (2001), The Notebook (2004) and A Song For Martin (2001). Do you Remember Love with Joanne Woodward was an early film (1985)

Philadelphia (1993) Popular, oscar winning courtroom drama about AIDS with Tom Hanks. But see the first film – An Early Frost (1985),

The Hours (2002) Three women are affected by Virginia Wolf’s Mrs Dalloway – and confront AIDS, depression and suicide. Base on Michael Cunningham’s novel and featuring Nicole Kidman, Julianne Moore & Meryl Streep.

The Sea Inside (2004) Dir Aeljandro Amenabar
About a quadriplegic and euthanasia.

See also Million Dollar Baby (2004) with Hilary Swank and Clint Eastwood. Talk to Her (2002). The Barbarian Invasions (2004).

Cartoon Sickness

Marisa Acocella Marchetto          Cancer Vixen  2007  Fourth Esate

Brian Pies                                                 Mom’s Cancer  2006 Abrams

 

 

7. SELECTED WORKS OF  SOCIAL MEDICAL ANALYSIS

Jonathan Gabe , Mike Bury &
Mary Ann Elston                                 Key Concepts in Medical Sociology Sage  2006
David Morris                                         Illness and Culture in the Postmodern Age   California
Erving Goffman .                                  Asylums (1961/Penguin:1968). And see Stigma (1963/Penguin:1968) Classics!
Cathy Charmaz                                     Good days, Bad days  Rutgers (1991)
Roy Porter                                              The Greatest Benefit to Mankind: A Medical History of Humanity from Antiquity to Present.  (1997) Harper Collins
Susan Sontag                                          Illness as Metaphor (1977) Penguin
————–                                            AIDS as Metaphor
Anselm Strauss                                    The Social Organisation of Medical Work  Transaction (1997)
Strauss, A. and Glaser, B.                Anguish: A Case Study of a Dying Trajectory. Oxford:Martin Robertson (1977) reprinted fro The Sociology  Press
Nikolas Rose                                          The Politics of Life Itself: biomedicine, power and subjectivity in the twenty first century (2007) Princeton
James, Alison & Jenny Hockey   Embodying Health Identities. 2007Basingstoke: Palgrave.
Mol, Annemarie  The Body Multiple: Ontology in Medical Practice. 2002  Duke University Press
Barbara Ehrenreich                          Smile or Die : How positive thinking fooled the world 2009 Granta
King, Samantha                                     Pink Ribbons, Inc. Breast cancer and the Politics of Philanthrophy  2006 Minnesota
Waskul, Dennis  and  Philip Vannini eds (2006) Body/Embodiment: Symbolic Interaction and the Sociology of the Body. Ashgate.

Some Of Ken’s Writings That Might Be Relevant

Plummer, K. (ed.) 1991: Symbolic Interactionism. 2 vols. Aldershot: Elgar.
———–1995: Telling Sexual Stories: Power, Change and Social Worlds. London: Routledge.
————- 2000 2nd ed ‘Symbolic Interactionism in the Twentieth Century’ in Bryan S. Turner ed   The Blackwell Companion to Social Theory. Oxford: Blackwell p193-222
———–2001   Documents of Life 2 : An Invitation to a Critical Humanism. London: Sage
—— 2003 Intimate Citizenship  Seattle: University of Washington Press
—— 2008 A Transplanted Life: unpublished memoir
——-2010  Sociology: the Basics  London: Routledge

 

 

8. A FEW WEBSITES

Blogs and Health Websites as Story Sources

Andy Miah & Emma Rich               The Medicalization of Cyberspace 2008 Routledge

Healthtalk online

http://www.healthtalkonline.org/

Healthtalkonline is the award-winning website of the DIPEx charity and replaces the website formerly at dipex.org. Healthtalkonline lets you share in more than 2,000 people’s experiences of health and illness. You can watch or listen to videos of the interviews, read about people’s experiences and find reliable information about conditions, treatment choices and

Examples of blogs and blog lists:

Cancer networking: http://info.cancerresearchuk.org/news/social_networks/

AIDS  short life stories    http://www.avert.org/hiv-stories.htm

Alzheimer’s Society: stories and poems
http://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200366

Liver Transplants:
A good current example of a blog is: Duni’s Kidney Transplant http://bobduni.blogspot.com/

My own very little entry can be found at: British Liver Trust
http://79.170.44.126/britishlivertrust.org.uk/home-2/liver-information/real-transplant-stories/ken-plummers-story/

A little listing of chronic blogs

http://www.networkedblogs.com/topic/Chronic_Illness

APPENDIX: Top Rated Self-Help Autobiographies of Health and Illness in the US circa 2003
1. Letting Go by Morrie Schwartz (terminal illness & dying)
2. Breaking Free from Compulsive Eating by Geneen Roth (compulsive eating)
3. A Grief Observed by C. S. Lewis (grieving)
4. Tuesdays with Morrie by Mitch Albom (aging and death)
5. Elegy for Iris by John Bayley (a spouse’s Alzheimer’s)
6. Night Falls Fast by Kay Jamison (suicide)
7. Death be Not Proud by John Gunther (a parent’s loss of an adolescent)
8. A Man Named Dave by Dave Pelzer (childhood abuse)
9. The Lost Boy by Dave Pelzer (childhood abuse)
10. Broken Cord by Michael Dorris (fetal alcohol syndrome)
11. An Unquiet Mind by Kay R. Jamison (bipolar disorder)
12. Heart of a Woman by Maya Angelou (women’s issues)
13. The Wheel of Life by Elisabeth Kubler-Ross & Todd Gold (death & dying)
14. Darkness Visible by William Styron (depression)
15. Motherless Daughter by Hope Edelman (loss of a parent)
16. Feeding the Hungry Heart by Geneen Roth (weight management)
17. I Never Promised You a Rose Garden by Joanne Greenberg (schizophrenia)
18. The Noonday Demon by Andrew Solomon (depression)
19. After the Death of a Child by Ann Finkbeiner (grieving the death of a child)
20. Out of the Depths by Anton Boisen (schizophrenia)
21. The Panic Attack Recovery Book by Shirley Swede & Seymour Jaffe (anxiety disorder)
22. The Virtues of Aging by Jimmy Carter (aging)
23. Girl, Interrupted by Susanna Kaysen (borderline personality disorder)
24. ADHD Handbook for Families by Paul Weingartner (ADHD)

KP JUNE 2013

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